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Dementia and Place: Practices, Experiences and Connections

by Richard Ward, Andrew Clark and Lyn Phillipson

Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.

Dementia and Place: Practices, Experiences and Connections

by Richard Ward Andrew Clark

Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.

Dementia and Social Inclusion: Marginalised groups and marginalised areas of dementia research, care and practice (PDF)

by Alison Bowes Anthea Innes Carole Archibald Charlie Murphy Jill Manthorpe

'There has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.' - Christian Council on Ageing 'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care 'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care. Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost 'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process. I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy 'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.' - London Centre for Dementia Care Newsletter 'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News 'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today

Dementia and Social Inclusion: Marginalised groups and marginalised areas of dementia research, care and practice

by Jill Manthorpe Anthea Innes Alison Bowes Carole Archibald Charlie Murphy

'There has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.' - Christian Council on Ageing 'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care 'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care. Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost 'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process. I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy 'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.' - London Centre for Dementia Care Newsletter 'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News 'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today 'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of Dementiaplus Examining impo...

Dementia Care: Sheldon Short Guide

by Christina McDonald

This book falls into three sections:- Living at home- When care needs increase- Finding and settling your parent into a care homeAll three stages bring different demands and skills. Other topics include:- Safety Planning- When your parent or older friend needs more support- Caring at home- Asking for help- Finding support for yourself

The Dementia Diaries: A Novel in Cartoons (PDF)

by Angela Rippon Matthew Snyman Social Innovation Kent

Brie's Granddad has always been a serious man, never without a newspaper and knowing the answer to everything. But now he keeps losing track of the conversation, and honestly, Brie doesn't really know how to speak to him. At first, Fred was annoyed that Gramps had come to live with them, it meant he had to give up his room! But then he starts to enjoy watching old films with him and spending time together... although there's the small problem of Gramps calling him Simon. Follow the stories of Brie, Fred, and other young carers as they try to understand and cope with their grandparents' dementia at all stages of the illness. Adapted from true stories, and supplemented with fun activities and discussion ideas, this book for children aged approximately 7-14 cuts to the truth of the experience of dementia and tackles stigma with a warm and open perspective.

Dementia Essentials: How to Guide a Loved One Through Alzheimer's or Dementia and Provide the Best Care

by Jan Hall

When a loved one has been diagnosed with dementia, many family members assume new roles as carers, helping their relative to remain safe, happy and as independent as possible. Dementia Essentials is a practical, realistic and reassuring guide to help you and the person with dementia on the journey ahead. Written by a real carer with first-hand experience of the challenges dementia poses, the book is full of essential advice, personal insights and helpful strategies, including:· Thorough explanations of dementia and Alzheimer’s· Advice on medication and getting support from local health professionals· Ideas for encouraging independence, confidence and activity while reducing anxiety, aggression and confusion· Guidance on how to prepare for the future, including legal and financial decisions and choosing a care home· Strategies for coping as a family carer, helping you to feel less alone and more empoweredPositive and practical, Dementia Essentials will help you provide and find the best possible care for the person you are supporting.

Dementia For Dummies - UK

by Simon Atkins

Your hands-on guide to dealing with dementia within the UK healthcare system If a loved one has recently been diagnosed with dementia, Dementia For Dummies, UK Edition provides trusted, no-nonsense guidance on what this may mean for you and your family. You'll get an understanding of the symptoms of dementia, make sense of the stages of the illness and grasp the differences between the various types of dementia, including Alzheimer's disease and vascular dementia. Dementia is an increasingly common condition that can have a significant impact on family life. Each person diagnosed is unique, and your loved one's symptoms can range from loss of memory to mood changes to communication problems and beyond. This sensitive, authoritative guide walks you through the different scenarios you may encounter as a family member or carer and explains step-by-step how you can keep your loved one as safe and as comfortable as possible—no matter how severe their symptoms are. Gives you the straight facts on dementia Covers the symptoms, causes and risk factors of dementia Helps identify and address the fears as you face a diagnosis Provides carers and family members with the information needed to help manage the illness If you're looking for support as you adjust to caring for a loved one with dementia, Dementia For Dummies helps make it easier.

Dementia For Dummies - UK

by Simon Atkins

Your hands-on guide to dealing with dementia within the UK healthcare system If a loved one has recently been diagnosed with dementia, Dementia For Dummies, UK Edition provides trusted, no-nonsense guidance on what this may mean for you and your family. You'll get an understanding of the symptoms of dementia, make sense of the stages of the illness and grasp the differences between the various types of dementia, including Alzheimer's disease and vascular dementia. Dementia is an increasingly common condition that can have a significant impact on family life. Each person diagnosed is unique, and your loved one's symptoms can range from loss of memory to mood changes to communication problems and beyond. This sensitive, authoritative guide walks you through the different scenarios you may encounter as a family member or carer and explains step-by-step how you can keep your loved one as safe and as comfortable as possible—no matter how severe their symptoms are. Gives you the straight facts on dementia Covers the symptoms, causes and risk factors of dementia Helps identify and address the fears as you face a diagnosis Provides carers and family members with the information needed to help manage the illness If you're looking for support as you adjust to caring for a loved one with dementia, Dementia For Dummies helps make it easier.

Dementia-Friendly Communities: Why We Need Them and How We Can Create Them

by Susan McFadden

Creating dementia-friendly communities can give people with dementia the chance to continue meaningful lives with reciprocal personal relationships. Underpinning successful dementia-friendly communities is an awareness of people with dementia as active citizens and the importance of supporting engagement in community life. This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips. This compassionate book tells another story about dementia, away from negative stereotypes. This alternative approach claims people can retain a sense of dignity, hold onto hope, sustain meaningful relationships, and live with a sense of purpose with support from their communities.

Dementia-Friendly Worship: A Multifaith Handbook for Chaplains, Clergy, and Faith Communities

by Virginia Biggar Lynda Everman Rabbi Steven M. Glazer

Religious faith is a powerful source of comfort and support for individuals and families facing dementia. Many faith leaders need help in adapting their ministries to address the worship/spiritual needs of this group. A product of Faith United Against Alzheimer's, this handbook by 45 different authors represents diverse faith traditions, including Christianity, Islam, Judaism, Sikhism, Buddhism and Native American. It provides practical help in developing services and creating dementia friendly faith communities. It gives an understanding of the cognitive, communicative and physical abilities of people with dementia and shows what chaplains, clergy and lay persons can do to engage them through worship. Included are several articles by persons living with dementia.

Dementia-Friendly Worship: A Multifaith Handbook for Chaplains, Clergy, and Faith Communities

by Virginia Biggar Lynda Everman Rabbi Steven M. Glazer

Religious faith is a powerful source of comfort and support for individuals and families facing dementia. Many faith leaders need help in adapting their ministries to address the worship/spiritual needs of this group. A product of Faith United Against Alzheimer's, this handbook by 45 different authors represents diverse faith traditions, including Christianity, Islam, Judaism, Sikhism, Buddhism and Native American. It provides practical help in developing services and creating dementia friendly faith communities. It gives an understanding of the cognitive, communicative and physical abilities of people with dementia and shows what chaplains, clergy and lay persons can do to engage them through worship. Included are several articles by persons living with dementia.

Dementia, Law and Ethics: A Practical Guide for Nurses and Other Healthcare Professionals

by Julian C. Hughes Aileen Beatty Charlotte Emmett

Clinical dilemmas in dementia contexts are often not because the clinical facts are in doubt, but because the ethical and legal underpinnings are uncertain - which can cause worry and confusion. This practical book will help nurses, healthcare assistants and other practitioners to think through their responses clearly in the midst of these difficultsituations.The chapters all stand alone, allowing the reader to dip quickly in and out of the book as required. They address complex issues such as abuse, behaviour that challenges, forced care, treatment withdrawal, and contain clinical case vignettes throughout. This is essential reading to give practitioners the confidence that good legal and ethical decisions can be made in the same way as good clinical decisions.

Dementia, Law and Ethics: A Practical Guide for Nurses and Other Healthcare Professionals

by Julian C. Hughes Aileen Beatty Charlotte Emmett

Clinical dilemmas in dementia contexts are often not because the clinical facts are in doubt, but because the ethical and legal underpinnings are uncertain - which can cause worry and confusion. This practical book will help nurses, healthcare assistants and other practitioners to think through their responses clearly in the midst of these difficultsituations.The chapters all stand alone, allowing the reader to dip quickly in and out of the book as required. They address complex issues such as abuse, behaviour that challenges, forced care, treatment withdrawal, and contain clinical case vignettes throughout. This is essential reading to give practitioners the confidence that good legal and ethical decisions can be made in the same way as good clinical decisions.

Dementia Positive

by John Killick

This book is not about the past, which has gone. Or the future, which is uncertain. But it is for those who want to improve the lives of people with dementia and themselves in the Here and Now. The book is not written by an expert but by a man seeking to find new approaches concerning dementia who wishes to share his discoveries. Killick steers clear of any sort of medical terminology and instead nurtures the often neglected aspects of dementia, thereby reinforcing to the reader that these are of no lesser importance. In recognition that we are all in this together, Killick gives equal prominence to quotations from, and conversations with, people with dementia and their carers.

Dementia Prevention: Using Your Head to Save Your Brain (A Johns Hopkins Press Health Book)

by Emily Clionsky Mitchell Clionsky

Worried about memory loss and dementia risk? This new book will show you easy-to-follow steps to keep your brain healthy.Emily Clionsky, MD, and Mitchell Clionsky, PhD, are a physician and neuropsychologist couple who have cared for their own parents with dementia, created a test used by doctors to measure cognitive function, and treated more than 25,000 patients with cognitive impairment. In Dementia Prevention, they combine the most current scientific findings about Alzheimer's disease and other dementias with their experience to present a practical guide that empowers you to improve your brain's future. This book skips the fads, the unsupported claims of advertised products, and fringe theories. Instead, the authors guide you through a science-based tour of dementia, including how your brain works and how its function is affected by everything from blood circulation and blood pressure to sugar levels, medications, vision, and hearing. You will learn how your activity level, weight, habits, mental outlook, and social engagement may affect your likelihood of developing dementia. Dementia Prevention provides a dementia risk checklist to better understand your personal risk profile to help you on your journey. The authors' training and experience as behavioral scientists will help you set better goals, identify roadblocks to success, and overcome these obstacles. Forgetfulness and confusion are not an inevitable part of growing older—you can make changes to keep your brain working well into your 70s and beyond. From how you breathe while you sleep to what you do socially and physically every day, Dementia Prevention will give you practical—and sometimes surprising—methods for you to protect your brain.

Dementia Prevention: Using Your Head to Save Your Brain (A Johns Hopkins Press Health Book)

by Emily Clionsky Mitchell Clionsky

Worried about memory loss and dementia risk? This new book will show you easy-to-follow steps to keep your brain healthy.Emily Clionsky, MD, and Mitchell Clionsky, PhD, are a physician and neuropsychologist couple who have cared for their own parents with dementia, created a test used by doctors to measure cognitive function, and treated more than 25,000 patients with cognitive impairment. In Dementia Prevention, they combine the most current scientific findings about Alzheimer's disease and other dementias with their experience to present a practical guide that empowers you to improve your brain's future. This book skips the fads, the unsupported claims of advertised products, and fringe theories. Instead, the authors guide you through a science-based tour of dementia, including how your brain works and how its function is affected by everything from blood circulation and blood pressure to sugar levels, medications, vision, and hearing. You will learn how your activity level, weight, habits, mental outlook, and social engagement may affect your likelihood of developing dementia. Dementia Prevention provides a dementia risk checklist to better understand your personal risk profile to help you on your journey. The authors' training and experience as behavioral scientists will help you set better goals, identify roadblocks to success, and overcome these obstacles. Forgetfulness and confusion are not an inevitable part of growing older—you can make changes to keep your brain working well into your 70s and beyond. From how you breathe while you sleep to what you do socially and physically every day, Dementia Prevention will give you practical—and sometimes surprising—methods for you to protect your brain.

Dementia, Sex and Wellbeing: A Person-Centred Guide for People with Dementia, Their Partners, Caregivers and Professionals

by Danuta Lipinska Caroline Baker Sally Knocker

Despite being integral parts of all our identities, sexuality, sex and intimacy are what many would call the Last Taboo in dementia care, usually seen as 'problem behaviours' to be stopped and dealt with. Informed by a combination of accessible neuroscience and person-centred compassion, Danuta Lipinska's new book shows that the human need for intimacy, attachment and sexual expression is as important for supporting the wellbeing and personhood of people with dementia as communication and care. Considering the brain as the body's biggest sex organ, it examines the cognitive changes that occur in dementia and what these changes mean in the context of sexual behaviour and consent. Taking Carl Rogers' Core Conditions and Tom Kitwood's psychological needs of persons living with dementia as a starting point, Lipinska offers a unique model for person-centred conversations about sex and sexuality that we have not seen before.

Dementia, Sex and Wellbeing: A Person-Centred Guide for People with Dementia, Their Partners, Caregivers and Professionals (PDF)

by Danuta Lipinska Caroline Baker Sally Knocker

Despite being integral parts of all our identities, sexuality, sex and intimacy are what many would call the Last Taboo in dementia care, usually seen as 'problem behaviours' to be stopped and dealt with. Informed by a combination of accessible neuroscience and person-centred compassion, Danuta Lipinska's new book shows that the human need for intimacy, attachment and sexual expression is as important for supporting the wellbeing and personhood of people with dementia as communication and care. Considering the brain as the body's biggest sex organ, it examines the cognitive changes that occur in dementia and what these changes mean in the context of sexual behaviour and consent. Taking Carl Rogers' Core Conditions and Tom Kitwood's psychological needs of persons living with dementia as a starting point, Lipinska offers a unique model for person-centred conversations about sex and sexuality that we have not seen before.

Dementia - Support for Family and Friends

by David Pulsford Rachel Thompson

For friends, family members and carers of people with dementia, understanding the condition and coping with the impact it has on their lives can be extremely challenging. This book, written specifically for these groups, explores each stage of the "journey with dementia" and explains not only how it will affect the person with the condition, but also those around them, and how best to offer support and where to get professional and informal assistance. It focuses on the progressive nature of dementia and the issues that can arise as a result, and gives practical advice that can help to ensure the best possible quality of life both for the person with dementia and the people around them. A comprehensive and practical introduction to the condition, this book is essential reading for anyone who has a friend or relative with dementia.

Dementia - Support for Family and Friends (PDF)

by David Pulsford Rachel Thompson

For friends, family members and carers of people with dementia, understanding the condition and coping with the impact it has on their lives can be extremely challenging. This book, written specifically for these groups, explores each stage of the "journey with dementia" and explains not only how it will affect the person with the condition, but also those around them, and how best to offer support and where to get professional and informal assistance. It focuses on the progressive nature of dementia and the issues that can arise as a result, and gives practical advice that can help to ensure the best possible quality of life both for the person with dementia and the people around them. A comprehensive and practical introduction to the condition, this book is essential reading for anyone who has a friend or relative with dementia.

Dementia - Support for Family and Friends, Second Edition (Support For Family And Friends Ser.)

by Rachel Thompson Dave Pulsford

A comprehensive and practical guide to dementia, this book is essential reading for anyone who has a friend or relative with the condition. This updated edition reflects new guidance on approaches to supporting people with dementia, focussing especially on the UK, and includes quotes from people with dementia as well as from family carers.The book explores each stage of the journey people with dementia face and explains how it affects the person, as well as those around them both at home and in residential settings. It shows how best to offer support and where to get professional and informal assistance. Focussing on the progressive nature of dementia and the issues that can arise as a result, it gives practical advice that can help to ensure the best possible quality of life both for the person with dementia and the people around them.

The Dementia Whisperer: scenes from the frontline of caring

by Agnes Juhasz

Agnes Juhasz, writing with great humanity and understanding, draws on many years of working with people with dementia to show how she has learned to communicate and work collaboratively with sufferers and find the essence of the person hiding behind the symptoms of the disease. Based around real-life stories she shows what she has found works and does not work, and candidly reveals her own emotions of frustration, irritation and – sometimes – amusement, and how she has learnt to cope with these. Her honesty in describing the highs and lows of being a carer is an inspiration to all those struggling to find the positive side of an illness we have all come to fear.

Demon Dentist

by David Walliams

The jaw-achingly funny novel from David Walliams, the number one bestselling author! Make your appointment if you dare…

Demon Lovers: Witchcraft, Sex, and the Crisis of Belief (Chicago Studies In Practices Of Meaning Ser.)

by Walter Stephens

On September 20, 1587, Walpurga Hausmännin of Dillingen in southern Germany was burned at the stake as a witch. Although she had confessed to committing a long list of maleficia (deeds of harmful magic), including killing forty—one infants and two mothers in labor, her evil career allegedly began with just one heinous act—sex with a demon. Fornication with demons was a major theme of her trial record, which detailed an almost continuous orgy of sexual excess with her diabolical paramour Federlin "in many divers places, . . . even in the street by night." As Walter Stephens demonstrates in Demon Lovers, it was not Hausmännin or other so-called witches who were obsessive about sex with demons—instead, a number of devout Christians, including trained theologians, displayed an uncanny preoccupation with the topic during the centuries of the "witch craze." Why? To find out, Stephens conducts a detailed investigation of the first and most influential treatises on witchcraft (written between 1430 and 1530), including the infamous Malleus Maleficarum (Hammer of Witches). Far from being credulous fools or mindless misogynists, early writers on witchcraft emerge in Stephens's account as rational but reluctant skeptics, trying desperately to resolve contradictions in Christian thought on God, spirits, and sacraments that had bedeviled theologians for centuries. Proof of the physical existence of demons—for instance, through evidence of their intercourse with mortal witches—would provide strong evidence for the reality of the supernatural, the truth of the Bible, and the existence of God. Early modern witchcraft theory reflected a crisis of belief—a crisis that continues to be expressed today in popular debates over angels, Satanic ritual child abuse, and alien abduction.

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