The Law and Ethics of Data Sharing in Health Sciences (1st ed. 2024) (Perspectives in Law, Business and Innovation)
By: and and and and
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- Synopsis
- Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.”The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today.Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
- Copyright:
- 2024
Book Details
- Book Quality:
- Publisher Quality
- ISBN-13:
- 9789819965403
- Related ISBNs:
- 9789819965397
- Publisher:
- Springer Nature Singapore
- Date of Addition:
- 02/27/24
- Copyrighted By:
- The Editor
- Adult content:
- No
- Language:
- English
- Has Image Descriptions:
- No
- Categories:
- Nonfiction, Law, Legal Issues and Ethics, Medicine, Philosophy
- Submitted By:
- Bookshare Staff
- Usage Restrictions:
- This is a copyrighted book.
- Edited by:
- Marcelo Corrales Compagnucci
- Edited by:
- Timo Minssen
- Edited by:
- Mark Fenwick
- Edited by:
- Mateo Aboy
- Edited by:
- Kathleen Liddell
Reviews
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- by Marcelo Corrales Compagnucci
- by Timo Minssen
- by Mark Fenwick
- by Mateo Aboy
- by Kathleen Liddell
- in Nonfiction
- in Law, Legal Issues and Ethics
- in Medicine
- in Philosophy